To the user that sent this to me – the submission form didn’t send me your name/email. Please contact me because I’d love to ensure you get replies to this post and make sure this story is attributed to you!
My journey with Thyroid cancer all started in June 2012 when I was just sitting on the couch feeling my neck (for some strange reason) and I felt a lump. Freaked right out; I had my husband and all my friends during the next few days feel it and everyone agreed it should not be there. Very panicked, I got into my Doctor and right away she could tell by the way I swallowed when she wrapped her hands around my neck it was in fact an enlarged thyroid.
So after an ultra sound and a consult with an ENT doctor it was determined that I did in fact have 2 nodules on my thyroid gland; one water filled and the other was tiny but solid and the ENT wanted me to have a fine needle biopsy! Not thrilled, but reassured thyroid nodules are very normal by him, I proceeded with the fine needle biopsy and it was uncomfortable but not that bad .(Honestly) About 10 days after that the ENT called me and told me to come in to discuss the results which came out inconclusive meaning they could not get a good enough tissue sample and that I’d have to have a partial thyroidectomy to get a good biopsy.
Well, I had surgery and I was scared but I came through it well ( stayed one night). Not alot of pain but hard to sleep for about a week afterwards but I used alot of pillows and basically just vegged (hard to do with little ones but they were so
great to mom).
The results did not come in and my Surgeon kept phoning pathology asking what the hold up was as they said they needed more time to get a good diagnosis.
Alarm bells started going off as I didn’t like how long things were taking but again being reassured it was probably nothing. Now we’re almost a month and a half past my surgery and FINALLY I get a call to come in and see my Surgeon/ENT. He very directly told me I had papillary thyroid cancer but it was found ( thanks to me acting so fast) very quickly and I would need a total thyroidectomy. I was not really scared or upset at the cancer diagnosis as he reassured me nobody dies of this but I was more upset that I’d have to have another surgery and live without a thyroid (that really scared me and
pissed me off.)
So I had the surgery quite quickly after the diagnosis about another month and that went even better. No pain when I woke up and no nausea (stayed one night) but I think I was more mentally prepared and not as scared.
Healing again was not bad, very little pain and I got on synthroid right away as my Oncologist said I did not need to have the RAI with such an early diagnosis (YAY). Most people have to wait 6 weeks to see what there body is going to do without a thyroid (I hear) so I was lucky. Just to note I have had remarkable support through all of this.
Minus a boss who let me go over it (JERK) but I do have two beautiful little girls I’ve had to be strong for (4 years and 6) and of course my husband was very supportive. I went back to work a month after my final surgery (found a nicer boss) and I’m doing great.
I have to go for blood tests every 6 weeks and the goal is to get me to an almost hyperthyroid state to suppress cancer cells so my docs up my dose every 6 weeks and I feel better each time they do. As far as I’m aware I’ll have to get checked for recurrence every 6 months for three to five years but my doctor said my nodule was so tiny that there was no spreading to lymph nodes and most likely I’m in the clear. 🙂
DON’T listen to all the negativity out there about being soooo tired for the rest of your life and gaining 90 pounds cause that is crap unless you let it be your reality. You WILL be tired at first till they get your dose mostly right, mine they’re still tinkering with but I feel mostly great and yes, you may put on a few pounds just from all the recovering time but I’m currently doing the blood type diet and buying a treadmill.
MY REALITY… I will have to be watching my diet and exercise program the rest of my life now that I have no metabolism, basically. But hey, I’m alive and survived two surgeries, I have two young girls who need me every day and a full time job and I just take it day by day.
Don’t let THY CA scare you; research it, get good docs and be positive. It pisses a lot of people off when said it’s the good cancer to get as NO cancer is good but hey, I’ll take it over some of the other diseases out there. 🙂
6 Responses to Mother of two young girls who had papillary thyroid cancer – doing great!
What a truly inspirational story. I sure love your spunk. I will be having a thyroidectomy in a few weeks and I am quite afraid. I have been doing a lot of reading and research. Appreciate all your insite and fortitude. You sound like a very special young lady. Best of luck to you and your family.
Thank you for posting you story. I am just in the beginnings of this journey and I am freaking out. They found a suspicious nodule on my thyroid and I am seeing an Endo in about 2 weeks. I am making myself crazy, and I’m not even sure what is going on yet. Of course I am hoping for a benign result, but I will try and keep your story with me if things turn out differently. I have a lot of life to live yet , a 21 year old in college about to graduate next year. And a 30 year anniversary coming up…Thank you, God bless♥
Oh boy, I sure needed to hear this too! All of the negative talk has really been a downer. Of course hardly anyone talks about the good just the bad. I think it’s best if you know that things are going to be okay, and you will figure out your hormones. I’m going to get on the exercise bike and giver. I’m going to try not to let this TT bring me down.
Thank you for your story. I have my TT this Friday. I have been so depressed hearing all these horror stories but yours gives me hope!
I have 2 nodules size 2.8 each and showed signs of pap. car. cancer/suspicious. I have 3 small kids. My thyroid levels are all normal -just been tired and dr. found a lumps. I pray i get my energy back….Thanks again. 🙂
Please let us know how you are doing after your TT!!!
Yes please let us know how you are doing post TT! I have a similar case. No issues and then PTC. All my blood work is normal but my TT is in 2 weeks. I’m a bit nervous but hopefully after my meds get regulated I won’t be so tired all the time!