Tag Archives: autoimmune

Trina’s TT story – Thyroidectomy due to Autoimmune Issues

We have a fantastic positive post thyroidectomy due to autoimmune issues story today from Trina!!
Thank you, Trina, for sharing your story!!

  • What was the reason for your thyroidectomy? Chronic signs and symptoms that were autoimmune in nature even though all the possible autoimmune disorders ruled out. Plus, thyroid changes on a repeat ultrasound.
  • What age were you when your thyroid was removed? 43—- I am 1 month post-operation.
  • What is your gender? Female

and most importantly of all, here is her positive post thyroidectomy story!

I had dealt with hypothyroidism since 2010 and was on medication for it prior to ever having surgery. However, I continued to be more and more symptomatic. Being a Registered Nurse, I was able to discuss my issues with my primary care physician in great detail and she sent to me to an Endocrine Surgeon. This was ideal because she had the medical experience of an endocrinologist. Based on my history, ultrasound, presenting signs and symptoms she stated that surgery was an acceptable path to take but if I wanted to wait 6 months and get another ultrasound, I could. We discussed everything in detail as well. I made my decision then and there to take it out. After surgery, the surgeon indicated though my blood work never suggested Hashimoto’s Thyroiditis it was obvious my thyroid was inflamed. She said that it could be a form of thyroiditis that has not been discovered yet. My pathology report came back negative for cancer.

I am one month post-op from a Total Thyroidectomy (TT) and I feel wonderful. My long list of symptoms are almost gone. I am warm for the first time, my hands especially, my hair is not falling out like it was, my nails are growing and look healthy, I sleep better, feeling flu like is gone, and puffiness is gone. Best of all the fatigue is gone! I still have some issues left but they will resolve in time. I have not gained any additional weight since surgery.

Many of the forums can sound like doom and gloom that might make you want to back out. Please, do NOT make your decision based on these forums. You have to look at your individual issue and how it is affecting your life. Those who have a TT for hyperthyroidism most likely will experience weight gain after surgery because they have went from a super charged metabolism to all new low metabolism.

Go into your post-op care educated from reputable sources. You have to be mindful of what your body is telling you. It is also important that you educate yourself on your medication. Understand the prescription (Brand name vs Generic) itself and how to take it. You need to avoid doing things that interfere with the drug absorption to get the optimal benefit from your medication. I am hopeful that I will continue to improve every day.

I do not regret having surgery for one second.


Filed under AutoImmune