5 Year Thyroidectomy Anniversary!

In celebration of my five year thyroidectomy anniversary, I am captaining a Relay for Life team. If you have found this site helpful, please consider making a small donation towards my fundraiser, which raises money for the American Cancer Society.

What a wild ride it has been. I’d say overall my quality of life is amazing.
Here is a recap from start to present of my thyroidectomy journey:

  • First 6 months after surgery – I have almost no memory of this time. It was like living in a hazy dream. Tired all the time. Tired and hazy.
  • Next year – very difficult to explain but essentially I felt like I had to ‘re-learn’ my body. Not in a ‘bad’ way but… things are different.
  • My short term memory feels severely impacted and I started using an iPad at work to help log notes – this has totally helped!
  • One year anniversary of the thyroidectomy, I completed a triathlon. I felt like a champion.
  • Year Two I learned that a low carb/high fat diet now works best for me to lose weight.
  • I also realize that not only is my short term memory junk, but facial recognition has devolved. I have a difficult time telling humans apart.
  • Year Three and Four I realize that I tire easily – endocrinologist confirms my levels are fine. I’ll chalk this up to age (I am in my late 30s) and lack of thyroid
  • Year Four – three different doctors tell me not to go on Birth Control because it will conflict with my thyroid medications. I do not listen to them. I should have listened to them. What a mistake. Ugh.
  • Year Five – just found out that my form of thyroid cancer was downgraded and is no longer a ‘cancer’! Follicular Papillary malignant mass does not spread outside the tumor and does not require radioactive iodine. I feel happy and justified that I didn’t go the radioactive iodine route.



October 2011

October 2011

Yes, I even put my surgery on my calendar, way back then.

Yes, I even put my surgery on my calendar, way back then.


Filed under Thyroid Cancer

8 Responses to 5 Year Thyroidectomy Anniversary!

  1. Randy Bachmann

    Very interesting post. I just had a total in Mid July. In a total Hypothyroid haze as I write this. I got in for my RAI on Wednesday. This has been the lost summer. Ready to start T4 (I guess that’s what it will be). It’s like I am dead inside emotionally. There’s no joy in anything. I’m not complaining about that, it’s just part of the process and I understand the plan is to correct that with the thyroid replacement meds very soon.

    • Hi Randy,
      I understand what you are going through. “Lost Summer” is a great way of putting it. I pretty much lost at least six months. I couldn’t believe what an intense adjustment period it was, for what felt like such a simple surgery.
      Please check back in with updates!!!!

  2. Toni

    Its been one year and one month since my thyroidectomy and I am so glad I have found you! I didnt realize until just now that this is going to take longer to adjust to then a typical surgery. I have blood work done every 3 months and so far each month my dosage of Synthyroid has changed.
    Weight has been an issue. I cant loose a damn pound! I exercise, I eat right 95% of the time. I see no change so then I beat myself up….my go to is food so this is NOT helpful!
    Any suggestions?

  3. Paris Andy

    Hi Sparky, how are you?
    I’m thyrodeless (surgery) since 2 years now and I still feel crap.
    I’ve read your experience and I still don’t understand, is classified as a positive experience? please tell me, as I keep reading about good experiences after thyroid surgery and I don’t understand how that is possible…
    Many thanks

    • Hey there,
      I’m super sorry to hear you are still unwell two years later. I recommend you find another endocrinologist. If you aren’t seeing an endocrinologist, find one as soon as possible. Have them change your thyroid hormone levels. I have found the way to handle all this was by having the right medical care.
      My doctor is amazing – he says it’s not on what the levels on the chart say, but how the patient FEELS. And he is RIGHT. So don’t let a doctor say ‘oh well the numbers are where they should be at’, and let you keep feeling crummy. :HUGS:

  4. Cheryl Long

    I am a 65 year old female. 16 years ago had 80% of pancreas, spleen and gall bladder removed, it was a long recovery. 6 years ago not wanting to go through another operation I went down the radioactive iodine and oroxine route. One lousy nodule did not read the script so a month ago had to have total thyroidectomy. So tired, so damned tired, needing naps, impatient, and forgetful, the rusty voice I can deal with but who is this woman and can just feel a bit of depression settling in so went googling some more. Thank God I found this page. Thank you all for your honesty and I don’t feel so alone and feel that I can now make it through with not so many tears knowing this stage will end. Being insulin diabetic is not helping but I feel more positive. Thank you.

  5. Ubert007

    I am 10 years past a total thyroidectomy. I have yet to feel normal. I see my PCP on a regular basis but each time he checks my numbers he says they are in normal ranges. So I believe I’m going to take one poster’s advice and find an endocrinologist. I appreciate everyone being candid about their battles.

    • I gained some weight and am not doing so great, since I no longer have a thyroid to auto regulate – I know I gotta go see my endo.
      Let’s go see some endocrinologists and check back with each other!! <3

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